Article ID: CBB072011815

Taking responsibility, making irresponsibility: Controversies in human gene editing (2022)

unapi

Morgan Meyer (Author)


Social Studies of Science
Volume: 52
Issue: 1
Pages: 127-143
Publication date: 2022
Language: English


In current discussions, human germline editing is often called ‘irresponsible’. Looking at the international summits on human gene editing held in 2015 and in 2018 and the announcement by He Jiankui of the birth of two gene-edited babies in November 2018, this article analyses how ‘irresponsible’ research was the result of various (dis)qualifications and demarcations. Against a background of discussions of responsibility, an individual scientist was singled out, his experiments were scrutinized for their soundness, legality and safety and ethical and moral stances were questioned. These are features of a process that I call ‘irresponsibilization’. This irresponsibilization of research is entangled with calls for further action: Irresponsible research like that of He Jiankui should be contained, the veracity of knowledge claims needs to be confirmed, and institutions and decision-makers are called to act. The controversy turned ‘irresponsible’ into an active category, and rendered explicit its political, institutional and practical ramifications.

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Authors & Contributors
Sonja Lindberg
Michael Field Dahlstrom
Cummings, Christopher L.
Evans, John H.
Hogan, Andrew J.
Kammen, Daniel M.
Journals
Science, Technology, and Human Values
Science as Culture
The Bridge: Journal of the National Academy of Engineering
East Asian Science, Technology and Society: An International Journal
Endeavour: Review of the Progress of Science
Journal of the History of Medicine and Allied Sciences
Publishers
Houghton Mifflin Harcourt
Johns Hopkins University Press
Oxford University Press
Rowman & Littlefield
Simon & Schuster
Concepts
Science and technology studies (STS)
CRISPR-Cas9
Genetic engineering
Research
Biomedicine
Gene editing
People
Doudna, Jennifer
He, Jiankui
Time Periods
21st century
20th century, late
20th century
Places
United States
China
Europe
France
South Korea
Institutions
Harvard University
National Institute of Health (U.S.)
Asilomar Conference on Recombinant DNA Molecules (1975)
Science for the People (SftP)
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