This study draws on interviews with forty-nine members of a biomedical research community in the UK that is involved in negotiating data sharing and access. During an interview, an interviewee used the words “ethical moment” to describe a confrontation between collaborators in relation to data sharing. In this article, I use this as a lens for thinking about relations between “the conceptual and the empirical” in a way that allows both analyst and actor to challenge the status quo and consider other ethical possibilities. Drawing on actor network theory (ANT), I approach “the empirical” using the concepts of controversy and ontological uncertainty as methodological tools to tackle the problem of ethics. I suggest that these concepts also provide a bridge for understanding the ontological structure of the virtual and the actual, as described in Deleuze’s Difference and Repetition. While other science and technology studies scholars have sought to draw on Deleuze, this article addresses the integration of ethics and empirical research. It arises as a critical reaction to existing treatments of this problem as found in empirical ethics, especially in the sociology of bioethics, and indirectly in ANT texts.
...More
Article
Nadine Levin;
Sabina Leonelli;
(March 2017)
How Does One “Open” Science? Questions of Value in Biological Research
(/isis/citation/CBB290502459/)
Article
Benedict Douglas;
(January 2018)
The mtDNA of Human Rights
(/isis/citation/CBB895767767/)
Book
Colin Koopman;
(2019)
How We Became Our Data: A Genealogy of the Informational Person
(/isis/citation/CBB981384434/)
Article
Charles Dupras;
Katie Michelle Saulnier;
Yann Joly;
(October 2019)
Epigenetics, ethics, law and society: A multidisciplinary review of descriptive, instrumental, dialectical and reflexive analyses
(/isis/citation/CBB595581322/)
Article
Klaus Hoeyer;
Aaro Tupasela;
Malene Bøgehus Rasmussen;
(May 2017)
Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing
(/isis/citation/CBB887043244/)
Article
Jaya Keaney;
(2022)
The Racializing Womb: Surrogacy and Epigenetic Kinship
(/isis/citation/CBB389875479/)
Article
Jennifer S. Singh;
(Marvh 2015)
Narratives of Participation in Autism Genetics Research
(/isis/citation/CBB713757349/)
Article
Margrit Shildrick;
(2022)
Maternal–Fetal Microchimerism and Genetic Origins: Some Socio-legal Implications
(/isis/citation/CBB586181231/)
Article
Brian Salter;
Yinhua Zhou;
Saheli Datta;
Charlotte Salter;
(September 2016)
Bioinformatics and the Politics of Innovation in the Life Sciences: Science and the State in the United Kingdom, China, and India
(/isis/citation/CBB590127808/)
Article
Nadine Levin;
Sabine Leonelli;
Dagmara Weckowska;
David Castle;
John Dupré;
(2016)
How Do Scientists Define Openness? Exploring the Relationship Between Open Science Policies and Research Practice
(/isis/citation/CBB530775467/)
Article
Adam Hedgecoe;
(July 2017)
Scandals, Ethics, and Regulatory Change in Biomedical Research
(/isis/citation/CBB888213703/)
Article
Ilke Turkmendag;
(January 2018)
It Is Just a “Battery”: “Right” to Know in Mitochondrial Replacement
(/isis/citation/CBB838678540/)
Article
Sara L. Ackerman;
Katherine Weatherford Darling;
Sandra Soo-Jin Lee;
(March 2016)
Accounting for Complexity: Gene–environment Interaction Research and the Moral Economy of Quantification
(/isis/citation/CBB257526872/)
Article
Martyn Pickersgill;
(August 2019)
Access, accountability, and the proliferation of psychological therapy: On the introduction of the IAPT initiative and the transformation of mental healthcare
(/isis/citation/CBB273628370/)
Article
Natali Valdez;
(2022)
The Politics of Postgenomic Reproduction: Exploring Pregnant Narratives from within a Clinical Trial
(/isis/citation/CBB617544692/)
Article
Niccolò Tempini;
Sabina Leonelli;
(October 2018)
Concealment and discovery: The role of information security in biomedical data re-use
(/isis/citation/CBB165158249/)
Article
Astrid Mager;
(April 2017)
Search engine imaginary: Visions and values in the co-production of search technology and Europe
(/isis/citation/CBB569340330/)
Article
Beth Greenhough;
Emma Roe;
(July 2018)
Exploring the Role of Animal Technologists in Implementing the 3Rs: An Ethnographic Investigation of the UK University Sector
(/isis/citation/CBB661318783/)
Article
Tresch, John;
(April 2013)
Another turn after ANT: An interview with Bruno Latour (Discussion)
(/isis/citation/CBB883617949/)
Article
Edwards, Paul N.;
Mayernik, Matthew S.;
Batcheller, Archer L.;
Bowker, Geoffrey C.;
Borgman, Christine L.;
(October 2011)
Science friction: Data, metadata, and collaboration
(/isis/citation/CBB261989499/)
Be the first to comment!