Radin, Joanna M. (Author)
This case considers the politics of reuse in the realm of “Big Data.” It focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation and circulation of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. By adapting the concept of the “digital native” itself for reuse, I argue that the history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin. In doing so, this history highlights otherwise obscured matters of ethics and politics that are relevant to communities who identify as Indigenous as well as those who do not.
...MoreArticle Bruno J. Strasser; Paul N. Edwards (2017) Big Data Is the Answer … But What Is the Question?. Osiris: A Research Journal Devoted to the History of Science and Its Cultural Influences (pp. 328-345).
Article Elena Aronova; Christine von Oertzen; David Sepkoski (2017) Introduction: Historicizing Big Data. Osiris: A Research Journal Devoted to the History of Science and Its Cultural Influences (pp. 1-17).
Thesis
Mauck, Aaron Pascal;
(2010)
Managing Care: The History of Diabetes Management in Twentieth Century America
(/isis/citation/CBB001561043/)
Book
Richard Andrew McKay;
(2017)
Patient Zero and the Making of the Aids Epidemic
(/isis/citation/CBB093085222/)
Article
Martin D. Moore;
(2018)
Food As Medicine: Diet, Diabetes Management, and the Patient in Twentieth Century Britain
(/isis/citation/CBB763102926/)
Article
Katrin Amelang;
Susanne Bauer;
(August 2019)
Following the algorithm: How epidemiological risk-scores do accountability
(/isis/citation/CBB077353059/)
Article
Elena Aronova;
(2017)
Geophysical Datascapes of the Cold War: Politics and Practices of the World Data Centers in the 1950s and 1960s
(/isis/citation/CBB204283086/)
Article
Quinn, Jim;
(Winter 2020)
Helen Free, Diabetes Testing
(/isis/citation/CBB357762280/)
Article
Matteo Galletti;
(2018)
Spinte gentili e consenso informato. Qual è il “bene” del paziente?
(/isis/citation/CBB039500973/)
Book
Mari Armstrong-Hough;
(2018)
Biomedicalization And The Practice Of Culture: Globalization And Type 2 Diabetes In The United States And Japan
(/isis/citation/CBB013221823/)
Book
Karin Alejandra Rosemblatt;
(2018)
The Science and Politics of Race in Mexico and the United States, 1910-1950
(/isis/citation/CBB428499522/)
Book
Matthew Shindell;
(2019)
The Life and Science of Harold C. Urey
(/isis/citation/CBB639943328/)
Article
Jasen, Patricia;
(2005)
Breast Cancer and the Politics of Abortion in the United States
(/isis/citation/CBB000773943/)
Article
Rubinson, Paul;
(2011)
“Crucified on a Cross of Atoms”: Scientists, Politics, and the Test Ban Treaty
(/isis/citation/CBB001231508/)
Article
Biddle, Justin B.;
(2014)
Can Patents Prohibit Research? On the Social Epistemology of Patenting and Licensing in Science
(/isis/citation/CBB001320767/)
Chapter
Alberto Bentoglio;
(2014)
"Sul caso di J. Robert Oppenheimer" al Piccolo Teatro di Milano
(/isis/citation/CBB475136154/)
Chapter
Elisabetta Vezzosi;
(2020)
«International inter-changes for the benefit of all mankind». Scienziati statunitensi allo Scientific Forum di Amburgo (1980)
(/isis/citation/CBB056972908/)
Book
Elisabetta Bini;
Elisabetta Vezzosi;
(2020)
Scienziati e guerra fredda: Tra collaborazione e diritti umani
(/isis/citation/CBB957549150/)
Article
Gulino, Matteo;
(2017)
L'evoluzione della legislazione in tema di sperimentazione animale nel Regno d'Italia
(/isis/citation/CBB907414232/)
Book
Reeds, Karen;
(2002)
A State of Health: New Jersey's Medical Heritage
(/isis/citation/CBB000201524/)
Thesis
Stacey Dearing;
(2018)
Providential Narratives and Remarkable Bodies: Illness and Disability in Early America, 1650-1776
(/isis/citation/CBB304345111/)
Book
Aho, James;
Aho, Kevin;
(2008)
Body Matters: A Phenomenology of Sickness, Disease and Illness
(/isis/citation/CBB001201370/)
Be the first to comment!