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Article ID: CBB871104705

“Digital Natives”: How Medical and Indigenous Histories Matter for Big Data (2017)

Osiris: A Research Journal Devoted to the History of Science and Its Cultural Influences
Volume: 32
Issue: 1
Pages: 43-64

DOI: 10.1086/693853

URI: https://www.journals.uchicago.edu/doi/abs/10.1086/693853

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Diabetes Epidemiology Patients Science and politics Science and ethics Medicine Indigenous peoples; indigeneity Big data United States

This case considers the politics of reuse in the realm of “Big Data.” It focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation and circulation of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. By adapting the concept of the “digital native” itself for reuse, I argue that the history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin. In doing so, this history highlights otherwise obscured matters of ethics and politics that are relevant to communities who identify as Indigenous as well as those who do not.

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Article Bruno J. Strasser; Paul N. Edwards (2017) Big Data Is the Answer … But What Is the Question?. Osiris: A Research Journal Devoted to the History of Science and Its Cultural Influences (pp. 328-345). unapi

Article Elena Aronova; Christine von Oertzen; David Sepkoski (2017) Introduction: Historicizing Big Data. Osiris: A Research Journal Devoted to the History of Science and Its Cultural Influences (pp. 1-17). unapi

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