IsisCB Explore

Article ID: CBB856025239

Informed Refusal: Toward a Justice-based Bioethics (November 2016)

Science, Technology and Human Values
Volume: 41
Issue: 6
Pages: 967-990

DOI: 10.1177/0162243916656059

Publication Date: November 2016
Edition Details: Special Issue: Resisting Power, Retooling Justice: Promises of Feminist Postcolonial Technosciences
Language: English

Outside Links

PubMed

WorldCat

Google Scholar

JSTOR

Academia.edu

Power (social sciences) Participation Biology and ethics; bioethics Equality Science and politics Justice Protest movements Ethics 21st century

“Informed consent” implicitly links the transmission of information to the granting of permission on the part of patients, tissue donors, and research subjects. But what of the corollary, informed refusal? Drawing together insights from three moments of refusal, this article explores the rights and obligations of biological citizenship from the vantage point of biodefectors—those who attempt to resist technoscientific conscription. Taken together, the cases expose the limits of individual autonomy as one of the bedrocks of bioethics and suggest the need for a justice-oriented approach to science, medicine, and technology that reclaims the epistemological and political value of refusal.

...More

Included in

Article Arne Pollock; Banu Subramaniam (November 2016) Introduction to Special Issue: Resisting Power, Retooling Justice: Promises of Feminist Postcolonial Technosciences. Science, Technology and Human Values (pp. 951-966). unapi

Citation URI

https://data.isiscb.org/isis/citation/CBB856025239/

Citations Indexes

Similar Citations

Article Roderic N. Crooks; (2019)
Times Thirty: Access, Maintenance, and Justice (/isis/citation/CBB487672024/)

Article Amy Adams Quark; (2019)
Outsourcing Regulatory Decision-making: “International” Epistemic Communities, Transnational Firms, and Pesticide Residue Standards in India (/isis/citation/CBB678564374/)

Article Carmen McLeod; Sarah Hartley; (July 2018)
Responsibility and Laboratory Animal Research Governance (/isis/citation/CBB564349730/)

Article Sabine Roeser; Udo Pesch; (March 2016)
An Emotional Deliberation Approach to Risk (/isis/citation/CBB657243437/)

Article Yoshio Nukaga; (July 2016)
Ethics Expertise and Public Credibility: A Case Study of the Ethical Principle of Justice (/isis/citation/CBB610704199/)

Article Barbara L. Allen; (November 2018)
Strongly Participatory Science and Knowledge Justice in an Environmentally Contested Region (/isis/citation/CBB069762669/)

Article Colleen Lanier-Christensen; (September 2021)
Creating Regulatory Harmony: The Participatory Politics of OECD Chemical Testing Standards in the Making (/isis/citation/CBB606231580/)

Article Nassim JafariNaimi; (March 2018)
Our Bodies in the Trolley’s Path, or Why Self-driving Cars Must *Not* Be Programmed to Kill (/isis/citation/CBB556129964/)

Article Sara Giordano; (May 2018)
New Democratic Sciences, Ethics, and Proper Publics (/isis/citation/CBB369714455/)

Article Erin A. Cech; Anneke Metz; Jessie L. Smith; Karen deVries; (September 2017)
Epistemological Dominance and Social Inequality: Experiences of Native American Science, Engineering, and Health Students (/isis/citation/CBB816459691/)

Article Daniel J. Hicks; (2017)
Genetically Modified Crops, Inclusion, and Democracy (/isis/citation/CBB212227086/)

Article Cook, Brian R.; Kesby, Mike; Fazey, Ioan; Spray, Chris; (October 2013)
The persistence of ‘normal’ catchment management despite the participatory turn: Exploring the power effects of competing frames of reference (/isis/citation/CBB350967664/)

Article Rahul Mukherjee; (September 2016)
Toxic Lunch in Bhopal and Chemical Publics (/isis/citation/CBB753030836/)

Article Arne Pollock; Banu Subramaniam; (November 2016)
Introduction to Special Issue: Resisting Power, Retooling Justice: Promises of Feminist Postcolonial Technosciences (/isis/citation/CBB706070191/)

Article Jenna M. Grant; (April 2016)
From subjects to relations: Bioethics and the articulation of postcolonial politics in the Cambodia Pre-Exposure Prophylaxis trial (/isis/citation/CBB531101853/)

Article Jennifer S. Singh; (Marvh 2015)
Narratives of Participation in Autism Genetics Research (/isis/citation/CBB713757349/)

Article Lucy Suchman; Karolina Follis; Jutta Weber; (November 2017)
Tracking and Targeting: Sociotechnologies of (In)security: (Introduction) (/isis/citation/CBB721841161/)

Article Helena Machado; Susana Silva; (March 2016)
Voluntary Participation in Forensic DNA Databases: Altruism, Resistance, and Stigma (/isis/citation/CBB243464504/)

Article Arne Pollock; (March 2015)
On the Suspended Sentences of the Scott Sisters: Mass Incarceration, Kidney Donation, and the Biopolitics of Race in the United States (/isis/citation/CBB568362575/)

Article Robert G. W. Kirk; (July 2018)
Recovering The Principles of Humane Experimental Technique: The 3Rs and the Human Essence of Animal Research (/isis/citation/CBB661013428/)

Comments

{{ comment.created_by.username }} on {{ comment.created_on | date:'medium' }}