Article ID: CBB524326627

Navigating the Body Multiple: Biomedicine, Genetics, and Sex/Gender in the Lives of CAH Patients (Research Note) (March 2020)

unapi

In this article, the author is interested in understanding how forms of care deployed for people with congenital adrenal hyperplasia (CAH) engage with ambiguously sexed bodies. CAH is a collection of inherited genetic conditions affecting the adrenal glands that in its classic form clinically manifests itself by way of atypical genitalia in newborn infants. It is mainly seen in females, but also in males, and often results in surgical intervention to produce a more typically sexed appearance. In this article, the author traces the ways in which genetic technologies, in cohort with clinical diagnoses and consultation sessions between geneticists, general practitioners, endocrinologists, surgeons, psychiatrists, and parents, assign sex to CAH patients and evaluate normality and abnormality vis-à-vis sexuality and gender. This project locates itself at the interstices of, on the one hand, surgical and other interventions suggested for the body to conform to genetic certainty in relation to sex, and, on the other hand, a range of cultural contexts, norms, and consequences. The author investigates how different forms of biomedicine help practitioners produce care regimes in response to the specific local, gendered, cultural, and class contexts of the CAH patient, and very specifically asks how these may or may not push the boundaries of a sex/gender binary. In the process, the author also speculates on the gendered futures available for CAH bodies.

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Authors & Contributors
Lin, Wen-yuan
Law, John
Halverson, Colin Michael Egenberger
Manoj Vimal
Wairokpam Premi Devi
Hauskeller, Christine
Concepts
Technoscience; science and technology studies
Medicine
Biomedicine
Genetics
Sexuality
Medicine and gender
Time Periods
21st century
20th century
19th century
Ancient
20th century, late
Places
East Asia
Singapore
China
Taipei, Taiwan
New Guinea
United States
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