Article ID: CBB339833803

In Search of a Problem: Mapping Controversies over NHS (England) Patient Data with Digital Tools (2019)

unapi

There is a long history in science and technology studies (STS) of tracking problematic objects, such as controversies, matters of concern, and issues, using various digital tools. But what happens when public problems do not play out in these familiar ways? In this paper, we will think through the methodological implications of studying “problems” in relation to recent events surrounding the sharing of patient data in the National Health Service in the United Kingdom. When a data sharing agreement called care.data was announced in 2013, nearly 1.5 million citizens chose to opt out. Yet, in subsequent years, there has been little evidence of a robust public mobilising around data sharing. We will attempt to track this elusive ‘non problem’ using some digital tools developed in STS for the purpose of mapping issues and problem definitions within science. Although we find these digital tools are unable to capture the “problem,” the process of searching helps us map the terrain of the case and forces us to consider wider definitions.

...More
Citation URI
https://data.isiscb.org/isis/citation/CBB339833803/

Similar Citations

Article Natasha D. Schüll; (March 2022)
Afterword: Shifting the Terms of the Debate (/isis/citation/CBB889022961/)

Article Emmanuel Henry; Valentin Thomas; Sara Angeli Aguiton; Marc-Olivier Déplaude; Nathalie Jas; (September 2021)
Introduction: Beyond the Production of Ignorance: The Pervasiveness of Industry Influence through the Tools of Chemical Regulation (/isis/citation/CBB736985993/)

Article Jenny Andersson; Erik Westholm; (2019)
Closing the Future: Environmental Research and the Management of Conflicting Future Value Orders (/isis/citation/CBB589179620/)

Article Emmanuel Henry; (September 2021)
Governing Occupational Exposure Using Thresholds: A Policy Biased Toward Industry (/isis/citation/CBB676852860/)

Article Malte Ziewitz; (January 2016)
Governing Algorithms: Myth, Mess, and Methods (/isis/citation/CBB061486372/)

Article Brian Salter; (January 2022)
Markets, Cultures, and the Politics of Value: The Case of Assisted Reproductive Technology (/isis/citation/CBB380652953/)

Article Carmen McLeod; Sarah Hartley; (July 2018)
Responsibility and Laboratory Animal Research Governance (/isis/citation/CBB564349730/)

Article Alexander Rushforth; Thomas Franssen; Sarah de Rijcke; (2019)
Portfolios of Worth: Capitalizing on Basic and Clinical Problems in Biomedical Research Groups (/isis/citation/CBB805796865/)

Article Akos Kokai; Alastair Iles; Christine Meisner Rosen; (November 2021)
Green Design Tools: Building Values and Politics into Material Choices (/isis/citation/CBB745455255/)

Article Allison Loconto; Scott Prudham; Steven Wolf; (2024)
Environmental governance through metrics: guest introduction (/isis/citation/CBB894684908/)

Article Mattia Andreoletti; David Teira; (2019)
Rules versus Standards: What Are the Costs of Epistemic Norms in Drug Regulation? (/isis/citation/CBB881753075/)

Article Kris Hartley; (November 2021)
Public Trust and Political Legitimacy in the Smart City: A Reckoning for Technocracy (/isis/citation/CBB172268665/)

Article Cook, Brian R.; Kesby, Mike; Fazey, Ioan; Spray, Chris; (October 2013)
The persistence of ‘normal’ catchment management despite the participatory turn: Exploring the power effects of competing frames of reference (/isis/citation/CBB350967664/)

Article Rebecca Slayton; (January 2021)
Governing Uncertainty or Uncertain Governance? Information Security and the Challenge of Cutting Ties (/isis/citation/CBB911361449/)

Authors & Contributors
Henry, Emmanuel
Prudham, Scott
Rijcke, Sarah de
Kris Hartley
Greenhough, Beth
Barnett, Allain J.
Concepts
Governance
Technoscience; science and technology studies
Power (social sciences)
Science and politics
Expertise
Environment
Time Periods
21st century
20th century
Places
Hong Kong
United States
Sweden
China
Canada
India
Institutions
National Cancer Institute (U.S.)
Comments

Be the first to comment!

{{ comment.created_by.username }} on {{ comment.created_on | date:'medium' }}

Log in or register to comment