Article ID: CBB339833803

In Search of a Problem: Mapping Controversies over NHS (England) Patient Data with Digital Tools (2019)


There is a long history in science and technology studies (STS) of tracking problematic objects, such as controversies, matters of concern, and issues, using various digital tools. But what happens when public problems do not play out in these familiar ways? In this paper, we will think through the methodological implications of studying “problems” in relation to recent events surrounding the sharing of patient data in the National Health Service in the United Kingdom. When a data sharing agreement called was announced in 2013, nearly 1.5 million citizens chose to opt out. Yet, in subsequent years, there has been little evidence of a robust public mobilising around data sharing. We will attempt to track this elusive ‘non problem’ using some digital tools developed in STS for the purpose of mapping issues and problem definitions within science. Although we find these digital tools are unable to capture the “problem,” the process of searching helps us map the terrain of the case and forces us to consider wider definitions.

Citation URI

Similar Citations

Article Carmen McLeod; Sarah Hartley; (July 2018)
Responsibility and Laboratory Animal Research Governance (/isis/citation/CBB564349730/) unapi

Article Jenny Andersson; Erik Westholm; (2019)
Closing the Future: Environmental Research and the Management of Conflicting Future Value Orders (/isis/citation/CBB589179620/) unapi

Article Alexander Rushforth; Thomas Franssen; Sarah de Rijcke; (2019)
Portfolios of Worth: Capitalizing on Basic and Clinical Problems in Biomedical Research Groups (/isis/citation/CBB805796865/) unapi

Article Malte Ziewitz; (January 2016)
Governing Algorithms: Myth, Mess, and Methods (/isis/citation/CBB061486372/) unapi

Article Robert G. W. Kirk; (July 2018)
Recovering The Principles of Humane Experimental Technique: The 3Rs and the Human Essence of Animal Research (/isis/citation/CBB661013428/) unapi

Article Allain J. Barnett; Melanie G. Wiber; (2019)
What Scientists Say about the Changing Risk Calculation in the Marine Environment under the Harper Government of Canada (2006-2015) (/isis/citation/CBB359628559/) unapi

Article Mattia Andreoletti; David Teira; (2019)
Rules versus Standards: What Are the Costs of Epistemic Norms in Drug Regulation? (/isis/citation/CBB881753075/) unapi

Article Cook, Brian R.; Kesby, Mike; Fazey, Ioan; Spray, Chris; (October 2013)
The persistence of ‘normal’ catchment management despite the participatory turn: Exploring the power effects of competing frames of reference (/isis/citation/CBB350967664/) unapi

Article Annalisa Pelizza; (March 2016)
Developing the Vectorial Glance Infrastructural Inversion for the New Agenda on Government Information Systems (/isis/citation/CBB157462407/) unapi

Article Włodzimierz Gogołek; (2017)
Refining Big Data (/isis/citation/CBB158654943/) unapi

Book Colin Koopman; (2019)
How We Became Our Data: A Genealogy of the Informational Person (/isis/citation/CBB981384434/) unapi

Article Brian Balmer; (March 2017)
Shadow Values and the Politics of Extrapolation (Special Issue Commentary) (/isis/citation/CBB819964335/) unapi

Article Sabina Leonelli; Brian Rappert; Gail Davies; (March 2017)
Data Shadows: Knowledge, Openness, and Absence (Special Issue Introduction) (/isis/citation/CBB950275922/) unapi

Article Jakob Raffn; Frederik Lassen; (2021)
Politics of Nature: The board game (/isis/citation/CBB033346411/) unapi

Article Marine Al Dahdah; (2019)
From Evidence-based to Market-based mHealth: Itinerary of a Mobile (for) Development Project (/isis/citation/CBB830941331/) unapi

Article Nassim JafariNaimi; (March 2018)
Our Bodies in the Trolley’s Path, or Why Self-driving Cars Must *Not* Be Programmed to Kill (/isis/citation/CBB556129964/) unapi

Authors & Contributors
Jakob Raffn
Frederik Lassen
Ziewitz, Malte
Pelizza, Annalisa
Włodzimierz Gogołek
Cook, Brian R.
Science, Technology and Human Values
Social Studies of Science
Bulletin of Science, Technology & Society
University of Chicago Press
Technoscience; science and technology studies
Power (social sciences)
Science and politics
Information technology
Technology and politics
Latour, Bruno
Great Britain
United States
21st century
20th century
20th century, late
National Cancer Institute (U.S.)

Be the first to comment!

{{ comment.created_by.username }} on {{ comment.created_on | date:'medium' }}

Log in or register to comment