Article ID: CBB127888205

The Extraordinary Case of Jahi McMath (2021)

unapi

Jahi McMath was a 13-year-old girl who was declared brain dead on December 12, 2013, after a hemorrhagic complication following complex oropharyngeal surgery. Her case gained international attention as her mother fought a legal battle to keep her on life support. Upon issuance of a death certificate shortly after the declaration of brain death, Jahi was transferred from California to New Jersey, where the law includes a religious exemption from the neurologic determination of death. There she became statutorily resurrected and was treated as a comatose, living patient for the next four and a half years. During that time, she underwent menarche and other aspects of puberty and developed intermittent responsiveness to commands, documented by eyewitness attestations and multiple home videos. Jahi died on June 18, 2018, from abdominal complications. This article summarizes her clinical history over those intervening years, taken directly from her medical records and personal observation. Her case represents an instance of a false-positive diagnosis of brain death, unquestionably made according to both the pediatric and adult guidelines, reinforced by four false-positive EEGs and a false-positive radionuclide blood flow test. The bioethical consequences of a nonnegligible risk of false-positive declaration of death are profound.

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Authors & Contributors
Dubow, Sara
Evans, John H.
Graboyes, Melissa
Hoeyer, Klaus
Holloway, Karla F. C.
Krischel, Matthis
Journals
Perspectives in Biology and Medicine
European Journal for the History of Medicine and Health
Medicina Historica
British Journal for the Philosophy of Science
Science, Technology, and Human Values
Social Studies of Science
Publishers
Oxford University Press
University of Minnesota
Duke University Press
Edizioni Studium
Franco Angeli
Ohio University Press
Concepts
Medicine and ethics
Biology and ethics; bioethics
Medicine
Science and ethics
Human experimentation
Ethics
People
Beauchamp, Tom L.
Beecher, Henry Knowles
Childress, James F.
Time Periods
21st century
20th century
20th century, late
19th century
Places
United States
Italy
Africa
Israel
Denmark
Boston (Massachusetts, U.S.)
Institutions
United States. Public Health Service
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