Article ID: CBB080289080

Moving Evidence: Patients’ Groups, Biomedical Research, and Affects (July 2021)

unapi

Research in science and technology studies has analyzed how patients’ groups engage in practices that connect biomedicine and patient experience in order to become involved in the shaping of biomedical research. However, there has been limited attention to the affective dimensions of such practices. Based on ethnographic fieldwork with a gynecological cancer patients’ group in Sweden, this article focuses on practices that aim to influence researchers and research institutions to prioritize biomedical gynecological cancer research. It analyzes how “affects” are woven through these practices and pays attention to the entanglements of affects, biomedical research, and lay experience they involve. The article explores the relation between the gynecological cancer patients’ group and biomedical research as a set of material-semiotic practices of “moving evidence.” These practices of moving evidence (1) enact gynecological cancer as under-researched; (2) collect and produce new “evidence”; (3) “mobilize” the evidence at public events, in interactions with biomedical researchers, and in different online settings; and (4) entangle affects with biomedical and experiential evidence to enact (a lack of) gynecological cancer biomedical research as a matter of concern.

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https://data.isiscb.org/isis/citation/CBB080289080/

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Authors & Contributors
Mareike Smolka
Roumbanis, Lambros
Greenhough, Beth
Riikka Homanen
Chevassus-au-Louis, Nicolas
Alexandra Hausstein
Concepts
Biomedicine
Technoscience; science and technology studies
Research
Cancer; tumors
Ethnography
Medicine
Time Periods
21st century
20th century, late
20th century
Places
United States
Sweden
Singapore
Colombia
Finland
Canada
Institutions
National Institute of Health (U.S.)
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