A growing number of bioethicists, policy-makers, legal scholars, patient groups, and other critically involved parties in North America and Europe recently have started calling for a new ethical principle to gather participants into clinical and genetics research. While long-prevailing regimes of consent have held that people participate in the research process out of `altruism' (and hence do not merit more than nominal payment for their participation), the increasingly visible profits accruing to bioscience researchers, companies, and universities suggest that this research contract is producing a stark asymmetry. A move is afoot, therefore, to develop a principle of benefit-sharing through which to guarantee some form of returns to research subjects. This paper tracks some of the implications of the rise of this new ethic, tracing its travels from the world of bioprospecting to clinical and genetics research, and exploring how and why benefit-sharing matters to Latourian notions of science as politics. What might it mean, both for bioscience and for our ideas about politics and publics more generally, to think of research not just as a mode of `speaking for', in Latourian terms, but as a mode of giving back? I argue that in shifting the problem from one of dialogue to one of distribution, benefit-sharing proposals are also implicated in the constitution of the biosciences' publics in new ways.
...MoreDescription On the rise of an ethic of benefit sharing, compensating research subjects for research that results in significant profits.
Similar Citations
Book
Fortun, Mike;
(2008)
Promising Genomics: Iceland and deCODE Genetics in a World of Speculation
(/isis/citation/CBB000850362/)
Article
M'charek, Amade;
Hagendijk, Rob;
Vries, Wiebe de;
(2013)
Equal before the Law: On the Machinery of Sameness in Forensic DNA Practice
(/isis/citation/CBB001320664/)
Article
Almeida, Carla;
DalCol, Franciane Lovati;
Massarani, Luisa;
(2013)
Controvérsia científica no telejornalismo brasileiro: um estudo sobre a cobertura das células-tronco no Jornal Nacional
(/isis/citation/CBB001420697/)
Book
Benjamin Hurlbut;
(2017)
Experiments in Democracy: Human Embryo Research and the Politics of Bioethics
(/isis/citation/CBB656933386/)
Book
Bernardino Fantini;
Fabrizio Rufo;
(2017)
Il codice della vita. Una storia della genetica tra scienza e bioetica
(/isis/citation/CBB297801530/)
Article
Daniel J. Hicks;
(2017)
Genetically Modified Crops, Inclusion, and Democracy
(/isis/citation/CBB212227086/)
Article
Jean-Marie Yante;
(2020)
Le secteur pharmaceutique en Belgique au XXe siècle et à l’aube du XXIe siècle
(/isis/citation/CBB668228708/)
Article
Christoff, Peter;
(2013)
Climate Discourse Complexes, National Climate Regimes and Australian Climate Policy
(/isis/citation/CBB001320850/)
Book
Francisco Malta Romeiras;
Henrique Leitão;
(2017)
Obra Selecta do Padre Luís Archer, S.J. Volume IV: Bioética (1998-2007)
(/isis/citation/CBB425429394/)
Article
Strasser, Bruno J.;
(2011)
The Experimenter's Museum: GenBank, Natural History, and the Moral Economies of Biomedicine
(/isis/citation/CBB001022861/)
Book
Sophia Roosth;
(2017)
Synthetic: How Life Got Made
(/isis/citation/CBB671229087/)
Article
Andrew J. Hogan;
(2016)
From Precaution to Peril: Public Relations Across Forty Years of Genetic Engineering
(/isis/citation/CBB750225154/)
Article
Ebbesen, Mette;
Andersen, Svend;
Besenbacher, Flemming;
(2006)
Ethics in Nanotechnology: Starting From Scratch?
(/isis/citation/CBB000780182/)
Article
Lewens, Tim;
(2004)
Introduction: Is Something Wrong with Bioethics?
(/isis/citation/CBB000501648/)
Article
Davide Battisti;
(2019)
Genome editing: slipping down toward Eugenics?
(/isis/citation/CBB945724739/)
Book
Jenny Reardon;
(2017)
The Postgenomic Condition: Ethics, Justice, and Knowledge after the Genome
(/isis/citation/CBB800995116/)
Thesis
Valerie Racine;
(2016)
Beyond Reductionism and Emergence: A Study of the Epistemic Practices in Gene Expression Research
(/isis/citation/CBB978842577/)
Article
Ulrich E. Stegmann;
(2016)
‘Genetic Coding’ Reconsidered: An Analysis of Actual Usage
(/isis/citation/CBB331291543/)
Article
Frank, Reanne;
(2015)
Back to the Future? The Emergence of a Geneticized Conceptualization of Race in Sociology
(/isis/citation/CBB001510181/)
Article
Williams, R. B.;
(2014)
The Birth, Death and Resurrection of the “Geneticologists”
(/isis/citation/CBB001202226/)
Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences
Science, Technology and Human Values
Revue d'Histoire de la Pharmacie
Perspectives on Science
Isis: International Review Devoted to the History of Science and Its Cultural Influences
Be the first to comment!